About haemophilia B
This section of the website is intended for members of the general public in the UK. Here you will find general information about haemophilia B.
WHAT IS HAEMOPHILIA B?
Haemophilia B is a condition present from birth that affects the ability of the blood to clot. People with haemophilia B do not have enough of a protein called clotting factor IX (factor nine) in their blood.1 Haemophilia B is described as mild, moderate, or severe.1
Having haemophilia B means that you are more likely to bleed from an injury. Bleeding often happens inside the body where you can’t see it, in places like the joints, muscles or soft tissue.1
If someone has an injury externally — for example, through falling or taking a hard knock — it may lead to excessive bleeding.1 However, bleeding can also happen for no apparent reason.1
Most treatments for haemophilia B help to manage its symptoms, and with the right care, most people living with the condition can still lead a full and active life.1
RESOURCES
Learn more about haemophilia B via the links to leading health and advocacy organisations below.
Reference
1. Srivastava A et al. WFH Guidelines for the Management of Hemophilia, 3rd edition. Haemophilia. 2020;26(Suppl 6):1–158.
Reporting side effects
If you get any side effects, talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the package leaflet. You can also report side effects directly via the Yellow Card Scheme. By reporting side effects, you can help provide more information on the safety of this medicine.