Preparing For Your Treatment

BEFORE YOUR TREATMENT

It is important that you fully understand the potential benefits and risks of HEMGENIX® treatment — for example, what is currently known and not yet known about the long-term effects of this therapy, in relation to both safety and efficacy.

If you have questions about HEMGENIX®, your care team will be happy to help. 

IS HEMGENIX® RIGHT FOR YOU?

To know whether HEMGENIX® is right for you, you will need to undergo some tests to check whether you will be eligible. These include:

• Blood tests to check that you are healthy and that your body is likely to accept HEMGENIX®¹
• Liver tests — ultrasound and elastography testing to check for scarring or thickening of your liver¹

THINGS TO CONSIDER BEFORE YOU RECEIVE HEMGENIX® 

HEMGENIX® cannot be reversed after you have received it. You will need to think carefully about how it may affect your life and be aware of the psychosocial effects, lifestyle requirements, and logistical considerations. For example:^2,3

• How you see yourself as an individual with haemophilia B and how you will adapt to change
• Being able to attend regular appointments
• Intimacy and family planning
• Alcohol consumption

The decision about whether to have gene therapy, and when to have it, is a personal one. You do not need to make the decision alone. You will have conversations with your haemophilia care team, and you may wish to discuss with patient organisations, family, and friends. Psychological support is also available if you need it — please speak to your care team about this.

Remember, you can take as much time as you need — there is no rush to make a decision.

If you decide to go ahead with gene therapy, you will be asked to sign a consent form. This shows that you fully understand the treatment and all the potential benefits and risks.